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I fear for the rights of my teen.
She is non speaking, with significant support needs and requires intensive care around the clock.
We already do not have support workers due to lack in skill level ...
I was discussing with a friend and fellow PDAer yesterday how challenging it can be to realise I am not being 100% honest with myself and/or others when trying to seek support. To be more specific, I ...
Our children struggling does not immediately indicate that we are not doing enough, or that we are missing some crucial information. To struggle is to be human and ourĀ behaviour is not the problem - i...
It is disheartening to constantly see the ongoing repetition of themes such as declarative language (which is more often than not, grossly misunderstood and misused) to disguise demands for PDAers. Th...
Existing, being human, is political; and political persuasion begins at home.
We are all part of the collective, and we all live within the systems that harm the most vulnerable, the marginalised, an...
One night, not so long ago, we had a PDA standoff.. well, not really a 'stand off' but a "let's see which PDAer can hang in there the longest" with one of my PDAers.
It's shower night. I reminded them...
Is this my childās lack of gratitude, or is it my grief?
There are times I catch myself thinking my child is āungratefulā for the life they have the privilege of having.
So many of us will recall be...
"Dear kristy,
I love my parents I want to be a hair-dresser when I grow up. I wont be a murderer I will be a tenderly loving person. My birthday is in july the thirteerth I'm in year two. I made my fi...
Iāve been raising, loving and supporting my own autistic children (four of them: 27, 20, 14 and 11) for 27 years this year. Weāre a completely autistic family, with additional forms of divergence thro...
My youngest says "No" and all its variations in response to almost every request I make of them.
And I don't flinch.
This is an accommodation. It is a means of balancing what feels off kilter for a PDAe...