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Reflections

 

 

 

 

 

It never gets easier

It never gets easier, nor am I ever better prepared for the moments my autistic children (and I) are exposed to another parent’s grief stricken story about their autistic child.

I was conditioned to ...

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I have not yet rebuilt.

Hello, I’m here writing. It isn’t easy, and it isn’t complete.

Be patient with me, please, as I figure out a way to communicate this internalised experience, these thousands of thoughts, these physic...

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When I give, I give myself.

Uncategorized Sep 11, 2023

Walt Whitman said "When I give, I give myself".

Both a blessing and a curse, this is something I am forever navigating and managing. I'm someone that loves to give, because it makes me feel good to s...

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We're in this together.

Uncategorized Sep 05, 2023

I had a close friend and colleague reach out to me about six months ago to ask how I'd feel about them writing a book on parenting neurodivergent children. They know that I'm also working on this (ins...

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PDAers don't make promises.

Uncategorized Sep 05, 2023

We have a saying in our family: "PDAers don't make promises".

It's a letting off the hook for all of us, because I can't tell you the amount of times adults try to bargain, not realising the demand t...

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You don't like the soup?

(ETA: This is not about being against therapy. It is a piece on the problematic nature of generic frameworks thrown at autistic people, rather than a consideration of the individual needs, wants, pref...

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Yesterday, someone trolled me on social media.

 

Yesterday, someone trolled me on social media.

That in itself isn’t the thing. That happens to autistic folks who joyfully resist the disorder narrative all the time.

It’s threatening to some, to re...

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It's her time to shine.

Uncategorized Jul 15, 2023

Trigger warning: ABA, restraint, compliance therapies, autistic child.

I don't typically share such personal stories about my loved ones, but I feel this one is really, really important.

 



She’s 12. ...

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Hypermobility

Long story short.

Oh, I love the fantasy of the "long story short" right there for me, an ADHDer.

But I'll try.

Last year, I laid on a surgery table, unresponsive, in hypertensive crisis.

I was

...
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PDA, Easter and other events

Uncategorized Apr 07, 2023

For the PDAer, holidays, birthdays and occasional events can be extremely challenging.

Firstly, there are expectations. The expectation to celebrate, be happy and merry, to receive with thanks and gr...

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